Thursday, June 20, 2013

Fibromyalgia Awareness Links

UPDATED 2013/07/03

There are all sorts of help and resources for Fibromyalgia now days.  Something that in the past was lacking.

FYI: Fibromyalgia is no longer under the Arthritis Foundation.
I believe this is not just because Fibromyalgia really doesn't deal with inflammation, but also it is more widely known, and the medical field has learned more about the condition.

Also with the age of information, more are becoming at least familiar with the condition as it's easier to find things on-line that discuss it.

Time for a disclaimer...I will say that I don't believe or agree with all the things mentioned or discussed at the following links.  Fibromyalgia is NOT just in their head - though there is brain fog, or Fibro Fog.  Also I've seen each case be different in how it effects or complicates things, in other words each person can be effected in different - many different ways.

The other trouble is it is a CHANGING condition...not only is it true that what works for one patient may not be effect or help another at all.  BUT within each patient the condition can change from day to day, even hour to hour.  Might be fine, ready to run a marathon, and then all of a sudden can't seem to even walk to a chair to sit down.  This not only makes things difficult for others to understand and offer help or encouragement, but this is one of the hardest things for the individual to "manage" because it's constantly changing.

I plan to share more throughout this month about managing with the condition, so please come back for a visit or two.

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If you are on Pinterest, you might be interested in my Fibromyalgia Board.
As of now, I've not got a lot pinned, but as with anything, more as time goes on.

You might also want to check out this group...

National Fibromyalgia & Chronic Pain Association

There are also on line support groups....

Good for the beginners and newly diagnosed:

 This group offers support for those with the chronic condition with a focus on housework and dejunking system in 15 mins increments, so that you don't over do.  Though I'm still receiving these newsletters, I only participate when I need to.  BUT I still use a 15 mins work cycle throughout my day.

A group on Facebook

Mayo Clinic articles

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